This boy you see above wasn’t born like this, but a sudden sickness crawled in when he was three and changed his life. The virus ate him so bad that his neck muscles couldn’t hold his neck again leaving it to fall right, left and front freely. His story below…
The family is appealing for urgent medical help for their son who suffers from a mega-rare condition which has left him with a twisted neck and a ‘wasted’ body. Mahendra Ahirwar, 12, from a village in India’s Madhya Pradesh state ,suffers from a mystery muscle-wasting disease, which has left him too frail to support his own body parts.
The boy’s extensor neck muscles are unable to hold his head in place, meaning it constantly falls onto his right shoulder or his chest. In addition, his limbs have lost almost all muscle tissue, leaving him weighing just two-and-a-half stone.
Mahendra’s parents say he was born a healthy baby, but within three years of his birth he developed the condition. They have been battling the condition for 9 years now, and no specialist has been able to help. His mom wonders if it is only death that can deliver him from this.
Family unit: Mahendra Ahirwar, 12-year-old, is pictured with his mother Sumitra Ahirwar, 35, brother Lalit Ahirwar, 16, Surendra, 10 and father Mukesh Ahirwar, 40, at their residence in Madhya Pradesh, India