Mum Ashley said she was determined to fight for her son Benjamin
Little Benjamin Rayner was given a “non-existent” survival rate after being born with hypoplastic left heart syndrome, on the urgent waiting list for a replacement since he was three-days-old.
The tot, whose condition means only half his heart is working, is now six-months-old, with his determined mum Ashley Hardy saying it was her “life dream” to help her son find a heart.
Speaking to the Sun Online, the mum said: “He has been on the urgent list for a transplant from three days old.
“We were told you just have to wait for a heart – there aren’t many baby hearts, and it kills us everyday thinking about where it would come from.”
The 31-year-old said her son had been diagnosed with the heart condition when she was just 24 weeks pregnant, having only been able to hold him for a minute after he was born before doctors whisked him away for treatment.
Benjamin was born with hypoplastic left heart syndrome
The tot was born at Royal Victoria Infirmary in Newcastle on August 1 last year, and has already undergone four major operations in his short life already.
Hypoplastic left heart syndrome occurs in up to four out of every 10,000 live births.
Ashley, her partner Dave Rayner and two eldest daughters are now fighting to give their little boy the best chance of survival.
She said: “We were gutted, everything was turned upside down when we found out about his condition.
“His survival rate was non existent but we decided we weren’t going to let him pass away, we were going to fight.”
She appealed for people to join the Organ Donor Register, with heart transplants giving at least 50 per cent of patients an extra ten years.
In many children, HLHS occurs by chance, with no clear reason evident for the underdevelopment.
Stay updated with the latest Nigerian news from Information Nigeria